SOUND Board
The Lived Experience Advisory Panel for Misophonia* Media and Research
*and misokinesia and related afflictions.
What is the SOUND Board?
The SOUND Board, formerly the Lived Experience Action Panel for Misophonia [LEAP], is a diverse panel of 5-8 volunteers, all of whom have lived experience with misophonia and/or misokinesia, including individuals with the disorder and their family members.
The SOUND Board evolved as a response to growing research and awareness of misophonia and the need for inclusive representation of personal experience with misophonia in the ongoing research, media, and beyond.
Submission Process
What types of content does the SOUND Board review?
study concepts
academic/research papers
social media posts
blog articles & essays
presentations
news publications
and more!
At this time, SOUND Board will also give feedback on unrelated content that the creator aims to adapt for a misophonic audience.
Inquiring researchers, clinicians, journalists, etc. should submit their work to the SOUND Board via the form below, allowing three weeks for reviewing and processing.
Researchers seeking feedback during the development of scientific research should include the following if applicable:
Abstract: 1 page or less
Aims: 1 page or less
Impact statement: 1 page or less
Goals of the SOUND Board:
To review materials submitted by misophonia researchers, clinicians, and other content creators in an effort to:
Assist researchers, clinicians, and content creators in understanding the needs and viewpoints of those with lived experience of misophonia, in general.
Help researchers develop research topics and hypotheses about misophonia that are informed by first-hand experience and represent the misophonia community.
Support researchers and content creators to better understand the impact of wording used in social media posts, research papers, blog articles, presentations, news publications, and more to help build a more cohesive representation of misophonia that includes accurate lived experience.
Support and uphold ethics in research as stated by the National Institutes of Health with the understanding that science and its institutions are vulnerable to disability discrimination, racism, sexism, homophobia and the like. The SOUND Board will attend to the potential intersection of scientific research and these forces of oppression that are sometimes repeated within the practice and production of science and scientific knowledge.
Read about a study that included the SOUND Board here:
SOUND Board Panelists
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Jennifer Brout, PsyD
Has misophonia & is a parent of a person with misophonia.
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Cris Edwards, MFA, CPS
Has misophonia.
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CJ Gibson, MS
Has misophonia.
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Ellie Rapp, BA
Has misophonia.
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Ee Vonn Yong, PharmD
Has misophonia.
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Samantha Zimbler, BA
Has misophonia.
Published Studies on Misophonia Reviewed by the SOUND Board
Quality of life among youth with misophonia: The role of internalizing symptoms and pessimism [September 2024] by Minjee Kook, Catherine E. Rast, Matti Cervin, Jane Clinger, Eleanor Smith, Isabel Draper, Nicholas Murphy, Marijn Lijffijt, Sophie Schneider, Mered S. Parnes, Caitlin Pinciotti, Wayne K. Goodman, Eric A. Storch, and Andrew G. Guzick [Journal of Psychopathology and Behavioral Assessment].
Examining Sleep-Related Problems in Youth With Misophonia [Dec 2025] by K. M. Wagner, M. Cervin, C. E. Rast, M. Parnes, N.Murphy, S. Spencer, E. A. Storch, A.G. Guzick